Showing posts with label Medical Updates. Show all posts
Showing posts with label Medical Updates. Show all posts

Saturday, March 28, 2015

Looking Back // Looking Forward

A lot has happened in the past three years since I last posted regularly to this blog. In many ways, it has been one long “night” in my life, meaning a season of difficulty. 

In February of 2013, I found out I was pregnant. I was really surprised because I was on a medication that was supposed to "shut down" my ovaries and protect against my estrogen-receptor cancer returning. While I was initially excited about the possibility of having a fourth child, I knew the pregnancy was pretty risky, both for me and for the baby. It was risky for me because in order for the baby to survive I would have to take hormones that might cause my cancer to return. And it was risky for the baby because I had so many medications in my system. But within just a few days of finding out I was pregnant, God took the baby. This was so hard for me because I really wanted more children. 

After my miscarriage, it was decided that I should have a complete hysterectomy. It would lower the chances of any cancer recurrence as well as prevent from any more pregnancies. After having a double mastectomy, having a complete hysterectomy was a very hard to think about. I felt like my body and my femininity were being destroyed. But I agreed to the surgery, and had it done in May of 2013.

Here is a journal entry I wrote during this time:
After all the medical issues I have gone through in the past 3 years I can’t help but think, “Why God?” Why does it just keep coming!? I have realized I need to take a step back and realize this is such a short time in the big picture.  And most importantly God will use each of these things to bring glory to himself.  Maybe he is causing me to go through cancer, pain, and a miscarriage so that I can relate to each of those things and be evidence that God will carry me through.  It may not always be the way I want it to be, but that is because I am not God.  
I so often want to play God not even realizing it.  I want to be the director of the show. But it doesn’t make sense for the actors in the show to tell the director how the show should be run.  Does it? I need to seek God’s will not mine.  I need to trust God’s will not mine.
I was looking forward to giving my testimony and singing some songs at our Community Bible Study retreat on Saturday, but I ended up in the ER.  The retreat was focused on rest. Resting in Christ alone to give us strength. I have gone through so much physically, emotionally and spiritually that I am ready to “rest.”  The place that I can get my ultimate and fulfilling rest is in Christ alone. Matthew 11:28-30 says, “Come to Me, all who are weary and heavy-laden, and I will give you rest. Take My yoke upon you, and learn from Me, for I am gentle and humble in heart; and you shall find rest for your souls. For My yoke is easy, and My load is light.” 
As I was thinking about what music I could sing at the retreat, I thought of the hymn, “I Heard the Voice of Jesus Say."   
“Bless the LORD, O my soul, and all that is within me, bless His holy name! Bless the LORD, O my soul, and forget not all His benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit, who crowns you with steadfast love and mercy, who satisfies you with good so that your youth is renewed like the eagle’s.” 
Psalm 103:1-5
As I reflect back on that time in my life, it makes me so thankful that I have my three beautiful children, and that I am currently cancer free and healthy. I love the last part of the verse I had written in my journal from Psalm 103, "who satisfies you with good so that your youth is renewed like the eagle’s.” 

God may not always answer my prayers in the way that I think they should be answered. So often I start to think that I am the director of the show, but I am not. But God answers our prayers in a way that brings glory to Himself and is ultimately good for us. If I pray for His will to be done then whatever circumstances may bring he will give me peace and joy in the midst of those circumstances. He does not promise to calm the storm, but He does promise to carry me through it. He will satisfy me as long as I keep my eyes fixed on Him.

Thursday, April 19, 2012

A Puzzle Piece

God has been challenging me in a lot of ways, especially health-wise. But even more He is showing me how small I am and how big He is. A friend recently sent me an excerpt from a sermon from a pastor in Florida.  As I read it I coudn't help but subsitute my own name throughout the writing.

I like to think of my life like a puzzle-piece.  It's one part of a really big picture that I cannot see.  In fact, all that I can see is my one little piece!  I can see its colors and hues and shapes and I can speculate about what it all is and about what it all means, but that's the best that I can do because I can't see the big picture that it fits into.  I can't see the overarching theme into which my little puzzle-piece life fits, and in which alone, its final meaning and purposes are found.  God alone sees the big picture.  God alone has the box top of the puzzle.  In fact, he created that picture.  It's his puzzle.  And here's the deal: he also created my little life, with all of its colors and hues and often odd, nonsensical shapes.  And, he created it to fit into the whole of his really big picture and, in finding its place in his picture (and only then and only there), to make perfect sense. 

As a result, I think that it's unreasonable to expect that my life will always make perfect sense to me in the here and now.  My vision is too limited.  The scope of my wisdom is too small.  And God (and life, for that matter) has not led me to believe otherwise.  I go to God's word and he tells me directly that his thoughts are not my thoughts and that his ways are not my ways.  He tells me plainly that, as the heavens are higher than the earth, so also are his thoughts than my thoughts (Isa 55:8).  So then, what is he telling me?  Well, at the very least, he's saying:

"Erin, you're finite; I'm infinite!  You're limited; I'm unlimited.  By your very nature you are incapable of comprehending all of my thoughts and ways and you cannot reasonably expect to be able to do so!  Such an expectation is illogical.  Erin, there will be things in your life for which you have no explanation.  Expect it!  Things that make no sense.  Anticipate it!  Pain that seems meaningless and pointless, from your itty bitty, microscopic, puny, infinitesimally small, sin-stained, corrupted, perspective.  So, if I can just say this somewhat gently, get over yourself and stop arrogantly assuming that I am as limited as you are and that, just because you can't make sense of it all, that I won't be able to make sense of it either.  Stop with your faithlessness and do what I've called you to do: to trust me even when nothing makes sense, for what is faith?  Erin I've told you what faith is.  I've given you its definition.  I'm not hiding these things from you!  I've put it in my word.  Go to my word!  Faith is the assurance of things hoped for (not things actualized, not things already in your hands), faith is the conviction of things NOT seen (as opposed to what you can, in this life, see - Heb. 11:1).  And, there are plenty of things, my daughter that you have not yet seen (like the whole rest of my really big and amazing picture!).  Have your read the story of Job, Erin?  Have you read what I ordained in life for him?  Have you compared your sufferings to that most famous of all sufferers?  Did you notice that there were TONS of things happening in that story which fully justified and made sense of his sufferings, but that Job was completely unaware of (thus, his, and your, questionings).  Have you read what I said to him? (Job 38-42)  Perhaps you should read it again.  And, have you considered my Son, Jesus.  Who left all of heaven with all of its glories to suffer trials and temptations like no other man (even you).  A man of sorrows who can fully sympathize with your weaknesses, yet without sin.  And a man who, on the cross, asked 'why?'  Now there's something you can relate to!  And what was the answer.  Well, in that moment, there was no answer.  But you know that answer, Erin, don't you?  The answer is 'for you.'  You're not supposed to know the answers to every question life leads you to pose (and there will be many).  I am supposed to know the answer and here's the thing: I do.  You are supposed to trust in me and when you doubt my love or goodness, you're supposed to go to the cross, over and over and over again, where my love for you is forever and indelibly written in the most precious ointment ever fashioned: the blood of my precious Son.  It is a healing balm for the troubled heart and mind.  So, Erin, stop with your fussing.  Enough with your anger (put it away).  Quit demanding answers that you are not even equipped to understand and run instead to my cross, which was a tree of death to my Son, but which is a tree of life to you.  Eat the fruit of his body and blood and come home, my son, to the Father who loves you, who collects all of your tears in his bottle (Ps. 56:8) and who promises one day to wipe them all away (Rev. 21:4) as I reveal to you the great beauty of your life as it finally finds its place in my picture.  There, the colors and hues and odd, nonsensical shapes will suddenly make sense.  And there you will stand in awe of how I can take even the darkest, most evil, awful things (like the unjust murder of my own Son, for example) and, out of them, bring light and beauty and goodness and life.  Come home, my daughter.  Do not delay."

I pray that I will continuously be reminded of these truths.  I had a CT scan of my kidneys and an MRI of my brain a few days ago.  I read this during the days that I was awaiting the results of those tests.  My life could have, once again, taken a dramatic turn.  But what seems dramatic to me would have just been one small blip in the scheme of things.  One more small way that Christ wanted to show his glory. 

Thankfully those tests came back with no metastatic disease.  Praise the Lord!  I will have a couple more tests next week.  I would appreciate continued prayers as I get those tests done and prepare for my reconstructive surgery on May 1st.

Wednesday, April 11, 2012

I Don't Know Why

I don't know why...
 
I had a doctor's appointment yesterday because I have had some bleeding problems for the past 6 months.  They finally decided that I need to have a CT scan on my kidneys and a cystoscopy procedure to rule out kidney disease or bladder cancer that my chemo could have caused.  
 
I don't know why I got cancer...
I don't know why I had to do treatments...
I don't know why I was allergic to the treatment...
i don't know why they found more...
I don't know why my surgery went wrong...
I don't know why my body developed heart issues...
I don't know why my body is so weak...
I don't know why my kidneys are having problems....
 
All I KNOW is that God is in control and he WILL NOT give me anything that I cannot handle with His help.  

All I KNOW is that God is giving me these trials in my body to draw me to have a deeper dependance on Him.

All I KNOW is that it is not my job to worry about my health, but trust that the great physician will heal me completely, whether that be here on earth or in heaven.

All I KNOW is that I have the joy of giving Christ the glory in all circumstances because he is my King!
 
I was reading in the book, "Calm My Anxious Heart," by Linda Dillow and she spoke to my heart through a chapter focusing on Habakkuk and the "why" question:
 
Habakkuk was to live by faith. This same statement is repeated three times in the New Testament: "The just shall live by faith" (Romans 1:17; Galatians 3:11; Hebrews 10:38). In other words, God didn't explain why; instead He told Habakkuk to trust Him with all his whys. Habakkuk was to trust God for what he didn't understand, what he couldn't see. He was to walk in the dark with God.
 
From a human perspective, this answer is frustrating. We want to know why. Surely God should explain Himself to us. Sometimes He does, but often He does not. God is God and He doesn't need to explain Himself. If we could fully comprehend God, He wouldn't be God -- He would be like us. In those instances when God doesn't tell us why, we will have to wait until we're in heaven for our answers.
 
Habakkuk realized this. Although he didn't get the response he wanted, he affirmed that God is God, in spite of Habakkuk's human lack of comprehension. Habakkuk praised God in his spirit, yet in his body he was quaking in his boots! "I heard and my inward parts trembled, at the sound my lips quivered. Decay enters my bones, and in my place I tremble, because I must wait quietly for the day of distress, for the people to arise who will invade us (Habakkuk 3:16)."
 
I love this description of this dear saint -- trembling, in agony of spirit, in so much pain that he said his bones were decaying! This encourages me, as my body often rebels when I'm trying to trust in my spirit. And even though his body and soul were quaking, Habakkuk declared what I believe is the most beautiful proclamation of faith in the Bible.

"Though the fig tree should not blossom, and there be no fruit on the vines, though the yield of the olive should fail, and the fields produce no food, though the flock should be cut off from the fold, and there be no cattle in the stalls, yet I will exult in the Lord, I will rejoice in the God of my salvation. The Lord God is my strength, and He has made my feet like hinds' feet, and makes me walk on my high places (Habakkuk 3:17-19).
 
What an incredible statement of trust in God!
 
My hope is that I will not keep asking myself why, but that I will trust God with all the whys. Please pray that I can get these tests done and have nothing to worry about before I go in for my final surgery. Thank you for your prayers!
 

Tuesday, April 10, 2012

Avon

Since I was diagnosed with breast cancer God has been gracious to provide for our needs in many ways. But our ongoing medical expenses related to my cancer have continued to be a financial challenge for our family, as it is for so many families dealing with a major illness.

A friend of mine recently mentioned the possibility of being an Avon representative. The business model is ideal for me as a stay-at-home mom, and the Avon Foundation is a huge supporter of breast cancer research and has programs in fifty countries that work to provide women access to care. And the products Avon sells go way beyond make-up; they also sell jewelery, clothes, home goods, children's products, and much more.


So as of today, I am working as an Avon representative! I am not intending to use this blog as a marketing tool - I want to keep it focused on being a "live diary" of my journey through cancer. But since this is a part of my journey, I thought I would include just one brief post about it.

If you would be interested in making an Avon purchase, you can shop at my personalized Avon website here. If you'd rather look through a printed catalog, just let me know - I can either give one to you in person or send you one in the mail. However, shopping on my Avon website will probably be best since there are new catalogs published every two weeks. 

Thanks so much for your prayers and continued support!

Saturday, March 17, 2012

My Heart My Help

Last Monday was a very scary day. Just when I start getting comfortable with day to day life, God gave me a reminder that I need to trust in Him and not in myself. Monday was that reminder for me.
I had been having some heart palpatations over the past couple weeks. I would get dizzy, light headed, my heart would beat very fast, and then it would stop for a few seconds before regulating itself again. Matt started getting a little worried about these events because they were getting more intense and more frequent. He suggested that I go into the doctor first thing on Monday morning.

So I went in to see my GeneralPpractitioner and she did an EKG to see if everything looked okay. After they did the EKG, the doctor came into the room with a very worried look on her face. She told me she was going to call an ambulance and have me transferred to the ER. Apparantly my EKG was abnormal and along with some other symptoms and having had radiation and chemo she wanted to rule out a heart attack. I tried to tell her that I was perfectly capable of driving to the ER, or that my husband could come and take me there, but she insisted on the ambulance. Well, the ambulance experience alone was about enough to cause a heart attack! 
They did another EKG at the hospital which again came back  abnormal. They did several other tests and soon ruled out a heart attack. Praise the Lord! Soon after my tests, Matt arrived at the hospital. We waited for a couple of hours, and eventually a cardiologist came in to meet with us. He had suggested admitting me for tests and monitoring, but that didn’t seem necessary (and I wanted to get home in time to take Lydia to gymnastics!). So he gave me a small heart monitor to wear for 24 hours.

I met again with the cardiologist yesterday (Friday) and he did an echocardiogram (ultrasound) of my heart. His speculation is that my abnormal heart rhythm is something caused by my chemo treatments. But he still wants to do a stress test and have me wear a heart monitor for 30 days. Just another reminder that my body is broken, but one day will be whole and perfect! 
Today I was reading a daily reading by Charles Spurgeon from Morning by Morning, which I have posted below. It was such a good reminder that God will help me. He is the Almighty Heavenly Father. If He can care for my soul by sending Jesus to pay for my sins on the cross, how easy is it for him to heal my body? It is my responsibility to trust that he is loving and faithful and will not harm me. 
This morning let us hear the Lord Jesus speak to each one of us: "I will help thee." "It is but a small thing for me, thy God, to help thee. Consider what I have done already. What! not help thee? Why, I bought thee with my blood. What! not help thee? I have died for thee; and if I have done the greater, will I not do the less? Help thee! It is the least thing I will ever do for thee; I have done more, and will do more. Before the world began I chose thee. I made the covenant for thee. I laid aside my glory and became a man for thee; I gave up my life for thee; and if I did all this, I will surely help thee now. In helping thee, I am giving thee what I have bought for thee already. If thou hadst need of a thousand times as much help, I would give it thee; thou requirest little compared with what I am ready to give. 'Tis much for thee to need, but it is nothing for me to bestow. 'Help thee?' Fear not! If there were an ant at the door of thy granary asking for help, it would not ruin thee to give him a handful of thy wheat; and thou art nothing but a tiny insect at the door of my all-sufficiency. 'I will help thee.'"
O my soul, is not this enough? Dost thou need more strength than the omnipotence of the United Trinity? Dost thou want more wisdom than exists in the Father, more love than displays itself in the Son, or more power than is manifest in the influences of the Spirit? Bring hither thine empty pitcher! Surely this well will fill it. Haste, gather up thy wants, and bring them here-thine emptiness, thy woes, thy needs. Behold, this river of God is full for thy supply; what canst thou desire beside? Go forth, my soul, in this thy might. The Eternal God is thine helper!
In the hymn How Firm A Foundation, the hymnwriter says “Fear not I am with thee; O be not dismayed! I am thy God, and will still give thee aid.”
"I will help you," says the Lord.
Isaiah 41:14

Tuesday, March 6, 2012

Found in Christ

I have now started physical therapy for a loss of muscle due to my treatments. Just another reminder that my body is temporary and I get to look forward to a new and perfect body in heaven. One with no pain and no cancer! I am hoping that this physical therapy will be temporary. The goal is to go a few times a week for a month then be able to do strengthening exersises at home. I am surprised that my body has a lack of muscle considering how hard my kids work me all day!

I have a wonderful and encouraging friend who has been walking along side of me throughout this past year and a half. She has once again given me a wonderful reminder of God's truth in Philippians 3:1,7-11.

Finally, my brothers, rejoice in the Lord. To write the same things to you is no trouble to me and is safe for you...Whatever I gain I had, I counted as loss for the sake of Christ. Indeed, I count everything as loss because of the surpassing worth of knowing Christ Jesus my Lord. For his sake I have suffered the loss of all things and count them as rubbish, in order that I may gain Christ and be found in him, not having a righteousness of my own that comes from the law, but that which comes through faith in Christ, the righteousness from God that depends on faith—that I may know him and the power of his resurrection, and may share his sufferings, becoming like him in his death, that by any means possible I may attain the resurrection from the dead.

When I was first diagnosed with cancer, I was able to have joy because I knew that I was, and am, "found in Him (v. 9)." Becuase of that truth i can, "rejoice in the Lord (v. 1)." My joy is not defined by circumstances, it is defined by Christ!

I may have posted this video before, but this song has such wonderful words and is such a great reminder that our hope is found In Christ Alone.

Friday, February 10, 2012

Medical Update

I have been recovering so well since my last surgery. All I can be is thankful! I think I have been overcompensating for the lack of energy that I have had in the past year. I have been enjoying cooking and doing a lot of crafts and organization projects (especially from Pinterest!). And I have been enjoying working with kids at church teaching children's choir, teaching a Wednesday night class and working with the youth kids. God has been so good to me in allowing me to serve in His church in these ways. 

A few weeks ago I also had the opportunity to spend a few days in Florida with my mom and her husband, Ned. It was a sweet time of enjoying God's creation and relaxing (except for Samuel being sick with strep and an ear infection...but he was a trooper!).






I met with my surgeon this past Tuesday and we decided to go ahead and do one more minor surgery to complete my reconstruction. To help us avoid hospital charges, my surgeon has arranged to do the surgery in his office using local anesthesia. I would appreciate your prayers for this surgery, especially that my pain tolerance will be high! The surgery should take place sometime in April.

Tuesday, January 17, 2012

Medical Update: Pray Without Ceasing

I have found that one of the harder things in dealing with cancer is the unknowns.  There is always the worry that this cancer will come back, or that there will be side effects of my treatment.

Every three months I have a follow up appointment with my oncologist and every six months I have a follow up with my surgical oncologist. Those are my two "cancer doctors.” I recently have had very positive appointments with both of those doctors.

My oncologist has me taking a shot to control the cysts that I was having, and so far that has helped tremendously. As a negative it has caused me to have major hot flashes and can likely cause osteoporosis, but at the present it is working and things look good. They will do blood tests every three to six months as a way to make sure there is no reoccurrence. 

My follow up with my surgical oncologist was positive as well. I was informed that when my type of breast cancer spreads it usually will spread to the lungs or bones, so if I have any really bad pain that would be something to get checked out. I have had a tear in my hip joint for about a year now, being treated with cortisone injections. Because of this I have been put on bone calcium supplements so that my bones will stay strong and not encourage bad cell production. But overall my doctor was very pleased with how I am doing!

Even with getting good reports from all my doctors there is always that "what if" in the back of my mind. As I have thought through this, I have been reminded of Paul’s words in Philippians 4:6, "Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God." The fact that Paul says "do not" indicates that being anxious isn’t just unhelpful – it is actually sinful. God commands us not to be anxious. This does not mean that I can’t be concerned about real and serious needs, but that I should not give into the temptation to worry or be anxious about those concerns.

And just like God commands us not to be anxious, he commands us to pray. And the fact that he puts those two commands together is no mistake. When I am tempted to worry or be anxious, the best way to remove that temptation is to go directly to God in prayer. My daughter has learned a verse in her Pre-K class that she recites all the time. It is 1 Thessalonians 5:17, "Pray without ceasing." She gets so excited to recite something, and having her recite this verse so often has not only engrained it in her heart, but also in mine. When I get anxious, I need to pray. And when I get anxious again, I need to pray. That is what it means to pray without ceasing. 

I would appreciate your prayers as I continue to recover from this past surgery and decide what and if there will be a follow up surgery in the coming months. Thank you!

Tuesday, January 3, 2012

Identity in Christ

I had my surgery about four days ago. When I compare how I am doing now to how I was doing four days after my previous surgery (in October), I can’t help but be thankful for how I am feeling. I still have a lot of pain in my back and on my left side, and will still have drains in for another week, but there have been no complications which I am so thankful for.   

I was so nervous going into this surgery because of what happened before. I think I made things worse for myself by not putting all of my trust in Christ. I was trying to hold on to some control of the situation and it was beginning to harden my heart. But God was gracious and brought me though this surgery so smoothly. Once again, he has opened my eyes to be reminded of where my identity is found.
It is so important for me as a Christian to be constantly reminding myself of who I am in Christ.  My identity is found in Christ and in his work for me on the cross. When I begin to get lost in the idea that the world is here for me or that my identity rests in myself – that is when despair comes. The fact that my identity is in Christ gives me hope and joy that cannot be taken away...no matter what may come in this life! As the Apostle Paul says, "I have been crucified with Christ. It is no longer I who live, but Christ who lives in me. And the life I now live in the flesh I live by faith in the Son of God, who loved me and gave himself for me (Galatians 2:20)."
Yesterday I heard a great reminder of these truths in the song, "Running to You," by Shane and Shane. It fits my situation over the last couple weeks perfectly (it even talks about being barely able to stand "on a cold night in December"). The lyrics and audio are below:



"Running to You" by Shane and Shane
It’s a cold night in December
And I can barely stand
Lord help me to remember
Who I am, oh, who I am

To You

I’m a dead man raised
A liberated slave
And I’m runnin’,
To You
My hands are raised
I’m giving everything
And I’m runnin’


My heart just started beating
And Your breath filled up my lungs
My eyes are finally seeing
What You’ve done
And who I am

To You

Friday, December 30, 2011

Medical Update: A Smooth Surgery (Finally)

Posted by Matt Fray

As most of you know, Erin had surgery this morning in Charleston. She was in surgery from about 7:30am to 12:30pm, and is resting fairly comfortably now.

Compared to her previous surgeries, this one seemed to be very smooth. There were no surprises (like the discovery of more cancer February) and no difficulties (like her blood vessel problems in October). When I talked to her in the recovery area afterwards, she was sleepy and in pain, but she said that she felt far better than she had after her other surgeries. We are both so very thankful for this wonderful blessing and answer to many prayers!

As far as we know, the surgery seems to have accomplished what was intended. Two very basic things were done: the removal of her chest port, and the removal of several internal stitches which had not dissolved. And two more complex things were done: the removal of a "mystery lump" in her lower abdomen (which turned out to be another stitch and scar tissue), and a second attempt at reconstruction on her left chest (which involved taking a section of skin from the back of her left shoulder and placing it on her chest). The surgeon was very happy with how the reconstruction went (especially compared to the previous attempt), and Erin is happy that progress was made.

Lord willing, Erin's recovery will be as smooth as her surgery. Her surgeon will check in on her tomorrow morning to make sure everything is healing well, and then she can go home either Saturday or Sunday depending on how she is doing.

Thank you all for your continued prayers and encouragement!

UPDATE: I did forget one "not smooth" part of Erin's surgery. At some point during the surgery or recovery, her right eye got cut, which is causing her a lot of pain. However, she just got some prescription eye drops and the cut should be much better in 24 hours.

Thursday, December 29, 2011

Medical Update: Erin's Surgery Tomorrow

Posted by Matt Fray

Tomorrow (Friday, December 30th), Erin will have one more surgery. This will be her fifth and final major cancer-related surgery this year. For an overview of what this surgery involves, you can read about it in her previous blog post. The surgery should last about 4 hours and she should be able to go home by Sunday.

While we are grateful for many things relating to this surgery (a good doctor, a surgery date before the New Year, loving family and friends who will help us with childcare and meals), we are both really dreading going through the surgery process once more. In many ways (physically, emotionally, spiritually), Erin is not quite over her ordeal in October, so it is hard to think about her taking on another challenge. I think she feels like a weary runner who is just two miles away from completing a marathon, only to discover that the last two miles of the course are uphill. Even though the finish line is closer than it has ever been, it is hard to muster the mental and physical strength needed to run the race well to its completion.

Of course, God is teaching us a lot about how to persevere through the hard times of life. When afflictions come, whatever their nature, God does not desire us to have an arrogant resilience nor a faithless despair. Rather, God calls us to trust in his sovereign presence and power, and by that trust to persevere in faith. The Puritan pastor Thomas Lye put it this way:

Times of adversity are seasonable times to trust in God. When we have no bread to eat, or water to drink, but only afflictions and astonishments, this is a time not for over-grieving, murmuring, sinking, desponding, despairing, but for trusting. In a tempest a believer must cast his anchor upward. Trust is a believer’s choicest antidote against fainting, swooning, and sinking…God often brings his people such afflictions that they do not know what to do. He does this that they might know what he can do. God is with his people at all times, but he is most sweetly with them in the worst of times.

More than once in recent weeks Erin and I have found ourselves fighting against the natural responses of grieving and murmuring as we have thought about tomorrow's surgery. We have had to ask God to give us the childlike faith he calls us to have (Luke 18:17) and the peace that passes understanding that he alone gives (Philippians 4:7).

As Erin goes in for her surgery tomorrow, please pray for three specific things. First, please pray that God would give us faith and peace. Those things have not come easily to either of us lately, and they are especially needed over the next few days. Second, please pray that the surgery would go smoothly. For those of you who have been keeping up with Erin personally or through this blog, you know that she doesn’t have a very good track record in terms of smooth surgeries, so it will only be by God’s special grace if this one goes well! Third, please pray for Lydia, Hudson, and Samuel, and for the family and friends who will care for them over the next few days. We are so thankful for those who are helping out, but will still be hard to be apart from them once more.

Thank you so much for your faithful prayers and encouragement! I will be sure to post another medical update following Erin's surgery tomorrow.

Wednesday, November 30, 2011

Medical Update: One More Surgery

Yesterday I had my final post-operative appointment with my surgeon at MUSC in Charleston. Overall, he was pleased with my body's recovery from my surgery in October. However, he did recommend that I have one more surgery in the coming weeks. I am not necessarily excited about going through another surgery, but this surgery will accomplish some good things and will not cost us anything since it will happen before the end of the calendar year.

Compared to my previous surgeries, this one should be relatively minor. The surgeon will do four things: (1) repair some scarring on my abdomen, (2) remove my chest port (the device that was used to administer my chemotherapy), (3) examine a painful lump in my lower abdomen, and (4) reconstruct a breast on my left side. Based on my previous consultations with my surgeon, I did not think I had any good reconstruction options available (the options were either too invasive or too complicated). But in my appointment yesterday my surgeon said I did have one more option: he could perform a TAP (or TDAP) Flap, a basic but reliable reconstructive procedure. I am very glad that I have this reconstructive option, and am thankful that my surgeon took the time to come up with a solution that is right for my particular situation.

My surgery is scheduled for December 30th. Please pray that God will give me peace as I prepare, one more time (hopefully one last time), for surgery and the recovery to follow. And please pray that the surgery itself would go smoothly and be successful in every way.

Sunday, November 13, 2011

A Faithful Husband

I have been feeling better and better over the past several days. This next week will be my first week watching all three kids by myself and I am looking forward to having that quality time with them. My pain from the surgery is lessening and my blood levels are getting higher and higher. Through God's reminders to me in his Word, and through the encouragement and prayers of God's people my heart has been strengthened as well.

I was in to see my oncologist yesterday and everything looked good. They decided to have me get a shot in order to keep me from getting recurring cysts. They also decided to run a genetic test for a blood clotting disorder. If it turns out that I have this gene I will have to stop my Tamoxifen (the cancer medicine that I am taking for 5 years). Please pray that this test would come back with no genetic sign.

As I look back over this past month, I have realized just how thankful I am for my husband. He stayed by my side every day in the hospital. He has taken care of all three kids, and has been the one to coordinate help with childcare if we have needed it. He has cooked meals, cleaned the house, washed clothes, bathed children, and this weekend he even painted part of the house! And he did all this while working at church preparing lessons, planning activities, and shepherding the congregation. Matt has had a lot on his plate in this past year, but he has faithfully taken care of his family and has never stopped encouraging us through God's Word. The only way I know to thank him is to be the best wife I can be and encourage him daily in the same way he has for me. Thanks, Mattie, for being such a wonderful and faithful husband and for reflecting the Bible's command, "Husbands, love your wives as Christ loved the church and gave himself up for her."


I have had fun this week hanging out with my younger sister Bekah. She came in town all the way from Colorado to help me this week. This was a big sacrifice for her because she has two little ones at home about the same ages as Samuel and Hudson. I understand first hand how hard it can be to be away from your children. Little did she know what she was getting herself into when she agreed to come: not only are my kids "slightly" noisy and active, but she got roped into helping paint part of our house as well! Thanks so much Bekah!

Sunday, October 23, 2011

Medical Update: A Chest Half-Full (Not Half-Empty)

As most of you know, I had reconstructive surgery at the Medical University of South Carolina in Charleston last Wednesday (10/12). Following the ten-hour surgery (in which tissue from my abdomen was used to reconstruct my chest), I had two main complications that were both related to my blood system.

I began bleeding internally in my chest on the Friday morning following the surgery (10/14). The loss of blood made me incredibly weak and really messed up my blood levels, so I had to have a blood transfusion to stabilize me. It took several days for my body to recover from that difficulty, but I was finally able to go home from the hospital the following Wednesday (10/19).

Some MUSC residents discussing my internal bleeding.
It was so good to be able to be home and see the kids. The night before we returned home I was looking through pictures of the kids on my phone and I just couldn’t stop crying. I missed them so much! God was so gracious in allowing me to be able to come home to see my babies. As it turns out, I was only able to spend a day with them before returning to the hospital in Charleston.

Hudson and Samuel getting ready to watch the Cardinals play in the NLCS.

Lydia at Hudson and Samuel's train-themed birthday party.
The day after I returned from the hospital (Thursday, 10/20) I developed a blood clot on the left side of my chest. I began having significant pain, swelling, and bleeding from my incisions, so I knew something was definitely wrong. Shortly after midnight I called my surgeon and described my symptoms. He told me to come back to Charleston immediately so he could see what was happening and to make a decision about what to do. Thankfully, my mom was in town to help with the kids, so she came to the house and Matt and I made the long, painful, nerve-wrecking drive to Charleston. Matt hates driving when he is tired and he hadn’t gone to bed before I began having problems, so that drive was especially hard for him.

We arrived at the hospital at 3am on Friday morning (10/21) and it was quickly determined that I needed surgery to resolve the situation. The clot was in the vein dedicated to taking blood away from my newly formed tissue flap on my left chest. If the vein remained clotted, the tissue flap would be consumed by blood and would die. So in order to preserve my reconstructed left chest, surgery was absolutely necessary. I was in surgery from 6:30am to 10:30am, allowing the surgeons to remove the clot and repair the vein. My surgeon was not sure what caused the vein to clot, but was pleased with the quality of the vein following surgery. He and his team were very diligent in checking the vein regularly for healthy blood flow, and it initially appeared to be working well.

Heading towards the operating room before my final surgery.
But about twenty-four hours after the vein repair surgery, on Saturday morning (10/22), I once again started having pain, swelling, and bleeding in my left chest. My surgeon quickly came to the hospital and sure enough, there was no blood flowing through the vein. For the second time in two days, the vein had clotted. And for the second time in two days, I had to go back into surgery. Sadly, despite their best efforts, my surgeon was not able to repair the vein. In one last attempt to save my reconstructed chest, he removed a vein from my left ankle and attempted to connect that to my tissue and chest vein. But after about an hour, that new hybrid vein clotted as well. My arteries were delivering blood to my chest, but I had no vein to pump the blood out again. There was nothing left to do except remove the tissue transplant. My surgeon had spent months preparing my chest to receive these two tissue transplants, and had spent dozens of hours in the operating room attaching and forming the tissue in order to restore my chest’s natural shape. But now one of the transplants was going to die; it literally had to be cut out and thrown away. My surgeon and his team have performed over five hundred of these surgeries, and I was the first person who has ever lost a transplant due to vein failure. 

When I woke up in the recovery room I asked myself, “I wonder if I have missed any of the Cardinals game (Game 3 of the World Series).” And after the surgeon told me that I had lost my reconstruction, my mind quickly shifted to the seriousness of the situation and I asked myself, “Why would God allow this to happen? Isn’t it enough to have cancer? Isn’t it enough to have complications in my cancer treatments? Isn’t it enough to have multiple blood transfusions and surgeries to sustain reconstructions? Why would God put me through all of this just to have half of my new chest thrown away?” I waited for answers, truths, and Bible verses that I had hidden in my heart to pop into my head. Quick, easy answers didn't come. But a phrase from 1 Corinthians 6:19-20 kept coming to mind, “You are not your own. You were bought with a price, so glorify God in your body.” I may not have all of the answers to my questions, but God's call on me is the same: glorify me, glorify me in your body, glorify me even in your broken body.

For my chest to be broken is very discouraging – both for me and for my surgeon. My body is only half-way repaired, and his work was only half-way successful. But to borrow and modify a common saying, my perspective on the situation is this: “my chest is half-full, not half-empty.” Sure, it’s discouraging that the left side of my reconstruction was lost after so much work. And it’s very discouraging that I am now left with no good options for reconstruction on that side. But I am so thankful for my surgeon’s hard work, and I truly am thankful that half of my reconstructive surgery was successful. As Matt has reminded me, the shape of my chest doesn’t change my beauty one bit. And as God’s Word has reminded me, my beauty isn’t defined by the shape of my body, but by the quality of my soul.

In the days and weeks to come I hope to be able to discern more answers to some of my "why" questions. But for now, I can take comfort and joy in the fact that God is good, faithful, and will be glorified even in this tough situation. And of course, it doesn’t hurt that the Cardinals won their game last night thanks to a record-breaking performance by Albert Pujols…and that I get to watch them again tonight. Go Redbirds!

Sunday, October 16, 2011

Medical Update: Progress

Posted by Matt Fray

After a couple days of difficulty, Erin is finally making some good progress in her recovery from her surgery. Though the doctors are still watching her carefully for blood loss and infection, her body is growing stronger. She is off her IV's, has been up and out of bed for a few minutes several times today, and is eating better as well. She might not feel like she is getting better (she is still very tired and is frequently in pain), but she really is doing much better.

If she keeps working hard to eat well and keeps her body active, and if she isn't slowed by any more complications, we should return home on Tuesday or Wednesday. It will be wonderful to get home; we're eager to see the kids, and I'm excited about being able to sleep in bed instead of a chair! We are so thankful for the family and friends that are helping care for Lydia, Hudson, and Samuel while we are here in Charleston.

As you pray for Erin, please pray especially for her perseverance in this recovery process. She has had and will have to push through a lot of pain and discomfort - even for basic tasks like finding a comfortable position to sleep in, moving across a room, and eating. Pray that she would have the determination to do what is necessary to strengthen her body, and that her hope and joy in Christ would be steadfast all the while. Also, please pray for grace and patience for me as I help care for her here in the hospital and at home. Pray that I would be faithful to serve her in humility and love in deeds of service, words of encouragement, and spiritual nurture just as God in Christ has done for me (Matthew 20:28; Ephesians 5:28-30; Philippians 2:3-8).

In the same way husbands should love their wives as their own bodies.
He who loves his wife loves himself. For no one ever hated his own flesh,
but nourishes and cherishes it, just as Christ does the church,
because we are members of his body.
Ephesians 5:28-30 

Saturday, October 15, 2011

Medical Update: A Slow Recovery

Posted by Matt Fray

As most of you know, Erin had reconstructive surgery on Wednesday. She made good improvement on Thursday, getting her pain under better control and, though it was very difficult, even got out of bed to sit in a chair for an hour or so. But her recovery process slowed down on Friday.

For those of you who don't have the time or desire to read the medical play-by-play, here's the authorized Cliff Notes version:
  • Erin began having internal bleeding in her chest on Friday morning. 
  • She lost enough blood that she needed to have some blood infused on Friday evening. 
  • She is now being monitored to see if her body will heal the bleeding itself or if surgery is required.
And for those of you who appreciate medical details, or who love Erin so much they want to know everything that is going on, or who simply have spare time on their hands today, here's the unabridged version:

  • Erin began having internal bleeding in her chest on Friday morning. Throughout the morning she became increasingly weak and pale (even her lips turned white). In addition, her temperature and heart rate were rising steadily, her blood pressure was falling, and bruises were appearing on her chest. So in the afternoon the doctors did an ultrasound (to check for excess fluid in her chest) an some blood tests (to measure her hemoglobin count, which helps indicate blood loss). The ultrasound did show excess fluid and her hemoglobin count was very low (a normal hemoglobin count for a female is 12, and hers was at 4). While some blood loss is normal following surgery (because of the blood thinner used during and after surgery), she was losing too much.
  • She lost enough blood that she needed to have some blood infused on Friday evening. While the doctors wanted to avoid giving her blood (because it risks the viability of the transplanted tissue), they determined that the blood loss was affecting her overall health in such a way that she really needed the infusion. So on Friday evening she was given 3 units of blood. She quickly regained her color and strength (enough to watch the Cardinals win Game 5 of the NCLS), her hemoglobin count rose to 8, and we both got a good night's sleep.  
  • She is now being monitored to see if her body will heal the bleeding itself or if surgery is required. While her improvement last night was encouraging, it will take a day or so to see if her body continues to improve. So far today she does seem to be maintaining her strength (as you can see in the picture to the right, she even got out of bed to sit in a chair for a while this morning), though her hemoglobin count is down to 6 (it is normal for the hemoglobin to rise dramatically following an infusion and then fall slightly). Her doctor came by about an hour ago and he said he anticipates that her blood loss will stop now (since the blood thinner is completely out of her system) and that her body will be able to absorb any lost blood. However, there is still the possibility that a surgery would be needed at some point if the problem persists.
We are very thankful that Erin's condition has improved since yesterday. Please continue to pray that God would heal her body so that she can avoid another surgery. Lord willing, she will continue improving and will be able to go home on Monday.

Thursday, October 13, 2011

Medical Update: Yesterday's Surgery

Posted by Matt Fray

As most of you know, Erin had reconstructive surgery yesterday at the Medical University of South Carolina (MUSC) in Charleston, South Carolina. The procedure she had done is fairly new, first developed by a surgeon here in Charleston several years ago, and involves taking skin tissue from the abdomen to reconstruct "natural tissue" breasts.

The surgery was scheduled to take 6-8 hours, but they worked on Erin for just over 10 hours. Apparently the doctors had a little trouble reattaching the venous vein on Erin's left side, so they took their time to make sure it was attached well and providing good blood flow. Though it made for a long day for me sitting in the waiting room (along with our pastor, John Fender), I'm thankful for good doctors who care more about doing things right than doing things quickly! The most encouraging part of Erin's surgery is that it appears that all of the transplanted tissue is infection free and will survive successfully. Whenever tissue is transplanted, there are risks of infection and tissue decay, so we are very thankful that neither of those appear to be issues for Erin.

I first saw Erin about an hour after she came out of surgery. Despite being highly medicated and in great pain, her first words to me were, "How was your day? Did you get a lot of work done? When does the Cardinals game start?" For those of you who know Erin well, I'm sure her interest in my day and her excitement about the Cardinals playoffs run come as no surprise to you. Still, since I am someone who struggles with being self-centered, Erin's selflessness never ceases to amaze me. In sickness and in health, in busyness and in boredom, Erin consistently disregards her own issues in order to focus on the needs of her husband, her children, and her friends.

Erin spent the night in the ICU, partially due to a shortage of rooms in the normal post-surgery wing, but also to allow her to have greater attention from the nursing staff. The nurses in the normal post-surgery wing are each responsible for 4-5 patients, but in the ICU they are only responsible for 2. I'm thankful that she is being taken care of so well! And I'm thankful that the ICU staff allowed me to stay in the room with Erin last night, since ordinarily visitors are only allowed in the ICU for an hour in the morning and an hour in the evening. Lord willing, Erin will require less attention throughout the day today and she can move to a normal room where she can get more rest. The care in the ICU is great, but it's also less private and more noisy than a normal room.

As you pray for Erin's recovery, please pray especially that her pain will subside so that she will be able to get some sleep. And you can pray that she will gain enough strength to begin getting out of bed and moving around a little bit, as that will help her recovery.

Tuesday, October 11, 2011

My Body Rests Secure

Matt and I are in Charleston tonight, getting ready for my reconstructive surgery which is scheduled for 7am tomorrow morning. Lord willing, this will be the end of a long road in dealing with my cancer and I am thankful that it is almost over.

Since I will be in the hospital for the next five days and will miss being with my boys on their birthdays (Samuel will be 1 tomorrow and Hudson will be 3 on Sunday), we celebrated their birthdays this past weekend. I can’t believe that Samuel is already a year old! He has become quite a tough, fast, and energetic little boy, but he is as sweet as can be! He tends to need his cuddle with mommy in between climbing the table and getting into the toilet. J 



On the other hand, it seems like Hudson has been two years old forever – so I am very glad he is turning three. He has developed quite a personality; always the comedian and always very particular about things (for instance, if you try calling him “buddy” or “son,” he will firmly remind you that his name is Hudson). I am so blessed by all three of my precious children! 



I am so thankful that my sister Katie came in town today from St. Louis to take care of the kids for the next several days. I am sure she would appreciate your prayers! J It was hard to say goodbye to the kids this morning, especially Lydia because she is very aware of what is going on. She remembers what it was like the last time I had surgery, so she has not been looking forward to the next several weeks. But I know that they will have so much fun with Auntie KK, Matt's mom, and my mom as they each come help out over the next two weeks!

Before I left town I was able to visit my friend Elizabeth St. Clair as she was in the hospital having baby boy number three! It brought back mixed emotions being at the same hospital, in a very similar delivery room, with the same doctor, exactly one year ago when I was having Samuel. It was sad thinking about the events that led to me finding out about my cancer, but it gave me joy thinking that I have come so far only through the help of my faithful savior Jesus Christ. And of course it gives me great joy to know that Elizabeth will be welcoming another beautiful boy to her sweet family!


It is intimidating and overwhelming thinking about tomorrow and the weeks of recovery to come, but God’s Word is a tremendous source of comfort. A friend of mine recently pointed me to Psalm 16:8-11, which says,

I have set the LORD always before me. Because he is at my right hand, I will not be shaken.  Therefore my heart is glad and my tongue rejoices; my body also will rest secure, because you will not abandon me to the grave, nor will you let your Holy One see decay. You have made known to me the path of life; you will fill me with joy in your presence, with eternal pleasures at your right hand.

On the eve of major surgery, it is an unspeakable comfort to know that not only my soul, but also my body rests secure in God’s hands!

Wednesday, October 5, 2011

Medical Update: Preparing for Reconstructive Surgery

Matt and I went to Charleston yesterday for two pre-op appointments for my reconstructive surgery which is scheduled for next Wednesday, October 12th, at the Medical University of South Carolina (MUSC). It was a long day, but it was good to spend time alone with Matt and to get everything ready for the surgery. Still, it was not fun to think about having the surgery. For the past six weeks, I have been healthier, stronger, and more active than any time in the past year, so it is hard to think about going back into surgery and dealing with another long recovery process.

You may remember that our original plan was to have this surgery at the same time as my double mastectomy in February, but they had to cancel the reconstructive part of the surgery because they discovered a second tumor in my lymph nodes. So after more chemotherapy and radiation, it is finally time for reconstruction. The reconstructive surgery I will be having is called a DIEP (Deep Interior Epigastric Perforator) Flap surgery. This is a specialized surgery that is only performed regularly at a few hospitals throughout the country, MUSC being one of them. As the name indicates, the surgery involves removing interior tissue from the abdomen and using it to reform the breasts. If you want to learn more about the surgery, you can watch a short informational video about the DIEP Flap surgery here. The surgery should last about 6-8 hours. Following the surgery, I will probably spend 4-5 days in the hospital for my initial recovery, though it will take around 6 weeks to make a full recovery. 

After my appointments in Charleston, we made the two-hour trip back home and arrived just a few minutes before the youth group from our church came over for Bible Study. I love having the youth group over - they have such energy and joy, and it is a privilege to help them understand God's Word! We ended the evening around the fire pit in the backyard, enjoying s'mores and a time of prayer for my surgery as well as several other needs in the group. It is so amazing that God invites us to cast our cares on Him, the God of the universe! To think that He hears us, loves us, and will answer our prayers is an amazing reality I too often take for granted.

As we prepare for my surgery, I would appreciate your prayers. Please pray that the surgery is a success and that my recovery would go smoothly. Also, please pray for the kids while Matt and I are in Charleston for the surgery and initial recovery. My older sister will be here with the kids for the first several days, and then Matt's mom will come for a few days. And pray for Matt, especially when we return home and he has to balance caring for me, the kids, and keeping up with his work responsibilities. Thank you so much for your prayers and support!

Wednesday, August 31, 2011

I've Already Started to Forget...

This past Sunday our pastor, John Fender, preached a very eye-opening and convicting sermon called, "God and Our Forgetfulness." The sermon was on Deuteronomy 8 where Moses repeatedly tells the people of Israel to remember what God has done (delivering them from Egypt) and said (the Ten Commandments) as they prepared to enter the Promised Land. Moses knew it was easy to be aware of those things during the difficult times in Egypt and the wilderness, but it would be harder to remember those things when they began enjoying the rest and comfort of the Promised Land. In other words, we need to fight against our natural tendency to become complacent in our faith when life gets comfortable. If we don't "feel" our need for Christ it is easy to forget about him and become lazy about depending on him completely.

The sermon helped me realize that I so easily fall into complacency. In many ways, I have already started to forget what God has taught me in the past year. I need to remember that God's word is true all the time and I should be trusting in it all the time. In going through cancer, I have been forced to look to God and I have been trying hard to see how he is using this for my good and his glory. More than anything else, I have seen God's faithfulness to me through people's prayers, encouraging words, and acts of help and support. I have seen God's faithfulness through wise doctors and good medical reports. But I have already started to forget these things! I have found myself once again trying to control my life and my circumstances and not looking to God and his truth on a daily basis.

Of course, God knows my heart and is always working to build my faith whenever it is weakening. Since this sermon was preached on Sunday I have found out about two new things I will need to depend on God for. On Monday, I found out that Hudson will have a surgery next Thursday (9/8) to remove his tonsils and adenoids. It is one thing for me to have surgery and be the one experiencing the pain, discomfort and uncertainty, but when it is my child that is something completely different. I have not experienced one of my children having surgery before, so I will certainly have to depend on God to take care of Hudson and to give me peace. Also, I found out today that I will have my reconstructive surgery six weeks from today on Samuel's first birthday (10/12). I am a bit nervous about having surgery again, both for what it will mean for me and for what it will mean for my family. But God has proved his faithfulness to care for every detail before, and he will do it again.

Please pray me in all this. And pray for my dear, sweet Hudson. Pray that he will have peace that passes all understanding and that this experience, in some way, will bring his heart (and mine) closer to Christ.


God and our Forgetfulness from John Fender on Vimeo.